Luz Marina

Friday 5 January 2007

summary: birth to 3y


Luz Marina is three years old since September last year, that makes 3 years and 4 months next week.
We have a diagnosis since past summer, but we thought there might be something troubling her since her first months when she would cry non stop, then suspected some motor delay around six months and then strongly suspected a problem towards her first birthday. Around that time Luz was not very curious, didn't make much eye contact, did not react to her name, made very few sounds and was still behind in her motor skills. Of course she was lovely and we always managed to make her laugh and giggle and sometimes she
just seemed lazy and layed back but we couldn't stop telling ourselves that she was different in a more literal way.

So in
January 2005 we managed to get an appointment with a neurologist and a pediatrician in a specialised centre in Paris were we lived at that time. Since then it has been appointments with different professionals non-stop. But also a lot of progress. Luz started to give her first steps a bit before her second birthday, to walk short distances a bit after her birthday and to walk confidently about 2y 6m. No running yet, but very quick walking. Luz is able to climb the steps to her mini slide, and manages to coordinate all the movements necessary to sit and slide. She is doing so since the month before her third birthday. At the same time she's started to climb onto the couch unaided and best of all: to spoon feed herself. Not long after starting school at Merrivale Nursery Luz started to go up and down stairs on her own, either holding the handrail or placing her hand on the wall. She does this with a lot of caution, but very sure of herself at the same time.

Luz has no verbal language. She makes few sounds, mostly vowels with few consonants. She used to sign for more (makaton) but has stopped for the moment. She has her own way of signing for a request, that is tilting her head while pulling someone's hand to it, or to the thing she's requesting or both (first her head, then the object). She is also able to ask things by means of picture exchange, though this is not generalised yet.



5 Comments:

Blogger Carmen Eva said...

hola, me habria gustado verlas/os, viendo si LAR se habia renovado las encontre, me acuerdo de un videito reciente, sonrie n cuando juega, se ve feliz...te pongo en mi blog

un abrazo

2 March 2007 at 16:32  
Blogger plant and animals and earth said...

This comment has been removed by the author.

30 May 2007 at 09:37  
Blogger plant and animals and earth said...

moi , se que je trouve embétant c'est que elle ne peut pas parler !!!!!

27 August 2007 at 03:08  
Anonymous Anonymous said...

Hola, soy el padre de Angélica María, mi hija tiene el sindrome delección 22q13 y tiene 4 años y 1 mes. NO sabe cuanto nos gustaria ponerme en contacto con ustedes.
Hemos visto a luz marina y esta lindisima espero que me mande alguna respuesta mi correo es "cesar_alberto747@yahoo.es" tambien puede localizarnos en "marines.9@hotmail.com"

25 July 2008 at 17:13  
Anonymous Anonymous said...

lo siento mi correo es cesar_alberto74@yahoo.es

25 July 2008 at 17:15  

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