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posted by luz @ 15:00
we have created this space to keep a register of luz marina's progress. We hope this can help professionals involved with our daughter but also anyone close to a child diagnosed with 22q13 deletion syndrome. The way this condition affects our children varies significantly so finding common traits or behaviours can sometimes give us ideas of what to expect or even how to help our children progress. more info on 22q13: http://www.22q13.org/home.html http://lemondedecamille.free.fr/
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3 Comments:
Hey!! that's the photo for the annoying MyLauncher 'puzzle' I have to hear ALL DAY!!! Isn't it?
Recently, Ada(our little sister)is having to have her mouth invaded by Luz's index finger, but she gets her revenge by pulling Luz's hair.
José
Hello
My name is Mélanie. I'm french. Our daughter has been recently diagnosed with Phelan Mc dermid syndrome. We live in Australia. First, we would like to thank you for your blog. It helped us a lot when we found out the genetic tests of Sanaé. I would like to ask you some questions : your blog is in english and you live in France so I was wondering if Luz was in a bilingual context and if it was a problem or how do you deal with this ? Also, I saw on Camille's website that your husband made some programms for a tactil screen. Would it be possible to get those programms ?
Thanks a lot for your answer
mMélanie
Hi! I know this is kind of off topic but I was wondering if you knew where I could
get a captcha plugin for my comment form? I'm using the same blog platform as yours and I'm having trouble finding one?
Thanks a lot!
Feel free to visit my web page ... great summer cottage
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