we have created this space to keep a register of luz marina's progress. We hope this can help professionals involved with our daughter but also anyone close to a child diagnosed with 22q13 deletion syndrome. The way this condition affects our children varies significantly so finding common traits or behaviours can sometimes give us ideas of what to expect or even how to help our children progress.
more info on 22q13:
http://www.22q13.org/home.html
http://lemondedecamille.free.fr/
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